Welcome to the February roundup of blogs from the Medicine and Life Sciences Research Communities. This month, we focus on Rare Disease Day, highlighting key issues, advances, and ongoing efforts to improve diagnosis, care, and support for those impacted.
Returning individual results to participants is gaining momentum as a core expression of patient-centered research. In rare disease development, where participants often contribute significant time, personal risk, and emotional investment, access to personal study data is increasingly seen as part of a respectful and transparent research relationship. When done thoughtfully, it reinforces trust, …
