Rare Disease 2020: One Mom Fights to Save Her Son, Amber Freed Raises Millions to Create a Cure. Coronavirus will not stop her.

There are nearly 7,000 rare diseases affecting approximately 1% of the global population. When your child is affected with one of these rare diseases, and it is so rare it does not even have a name, what do you do? Amber Freed’s decision was to fight like a mother. She recently shared with us what that means for her and her son, Maxwell. Birth and Growing Concerns Maxwell and his sister, Riley, were born on March 27, 2017. After several years of trying, the twins’ healthy birth was a perfect...